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FSHD Society

About the cause

The FSHD Society is the world’s largest research-focused patient organization for facioscapulohumeral muscular dystrophy (FSHD), one of the most prevalent forms of muscular dystrophy. They’re accelerating the development of treatments and a cure to end the pain, disability and suffering endured by one million people worldwide who live with FSHD—including Dan Levy’s aunt, Gayle. The FSHD Society has transformed the landscape for FSHD research and is committed to making sure that no one faces this disease alone.

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