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A group of children with CCHS celebrate under an archway of balloons A group of children with CCHS celebrate under an archway of balloons

the CCHS Network

About the cause

Congenital Central Hypoventilation Syndrome is an extremely rare disease with no known cure or available medication. The CCHS Network inspires patients to live full and productive lives, educates the community regarding the intricacies of CCHS, and mobilizes resources to drive research for better treatments. Your generosity can support their work of funding annual scientific grants, providing educational programs and supporting CCHS families around the globe. Donations can help to secure a future where CCHS is no longer a life-threatening diagnosis!

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