The Charlotte and Gwenyth Gray Foundation to Cure Batten Disease was established to raise the necessary funds to progress this urgent medical research in order to save the Gray girls and all children impacted by Batten disease. After lots of questions and many tests, 4-year-old Charlotte Gray was diagnosed in March 2015 with Late Infantile NCL Batten Disease CLN6. Her family quickly learned this neurodegenerative brain disease is extremely rare and would leave Charlotte blind, immobile, cognitively impaired, and, ultimately, dead between the ages of 6 to 12. Charlotte’s younger sister Gwenyth was immediately tested and given the same grim diagnosis. Due to its rarity, solutions for this presently incurable and fatal disease have received minimal research, focus and funding. But there is hope; three promising treatment options exist, including a potential cure.
The Giving Back Fund is a national umbrella charity organization involved in a wide variety of issues and causes. We work with a unique clientele of individuals who desire to give back, and we provide philanthropic consulting, management and administrative services to help them accomplish their goals. In addition to heart-wrenching challenges like that of the Gray family, we maintain segregated funds for a wide variety of projects supported by our clients. Examples include world poverty, trafficking, the global orphan crisis, earthquake relief efforts, inner-city youth support, health and nutrition, arts programs, scholarships, veterans issues and other debilitating and life-threatening conditions like ALS.